Rahiima Nalwoga is a 19 months old girl diagnosed at 6 weeks with Tetra-logy of Fallot with absent pulmonary Valve on 26th June, 2019 at Uganda Heart Institute. This means her unique heart has ( a missing pulmonary valve, a large VSD – a large hole of about 9mm in diameter, obstructed out flow of blood from the right ventricle to the lungs (pulmonary stenosis) and a massively dilated main pulmonary artery.
Since her diagnosis, she has had several bouts of severe pneumonia (about seven times) being admitted to Uganda Heart Institute and put on oxygen. After evaluation of the severity of her condition, Cardiologists and surgeons at UHI , advised to seek surgery outside Uganda because her condition could not be operated on from UHI. With all these defects, the Cardiologists and surgeons are of the view that she will need to have life long care including about 3 surgeries but currently Rahiima urgently needs her first full repair. Her first repair was to happen in May, 2020 when she made a year but due to COVID-19 and travel bans, it didn’t happen.
Rahiima is the last born to two brothers and one sister. Her father is an IT engineer and her mother is a stay at home mum.